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Saturday, October 22, 2016
8:30 a.m - 4:30 p.m.

Robert H. Lurie Medical Research Building
303 E. Superior
Baldwin Auditorium

This program is made possible by:

On October 22, Multiple Endocrine Neoplasia (MEN) 1 and 2 patients and their families are invited to join us for a patient and family seminar presented in partnership with American Neoplasia Support. Boxed lunch and discounted parking will be provided to all registered guests.

Reception to follow with American Multiple Endocrine Neoplasia Support.

Agenda

8:30 a.m.
Registration & Breakfast
9:05 a.m. Sturgeon Hageman
Welcome & Introductions
Cord Sturgeon, MD, Lurie Cancer Center, Endocrine Surgery
Linda Hageman, RN, American Multiple Endocrine Neoplasia Support
9:20 a.m. Sturgeon
Overview of MEN-1 and MEN-2
Cord Sturgeon, MD, Lurie Cancer Center, Endocrine Surgery
9:40 a.m. Bloch
My Pituitary Tumor Grew Back After Surgery — Now What?
Orin Bloch, MD, Northwestern Medicine, Neurosurgery
10:00 a.m. Elaraj
HYPERparathyroidism and HYPOparathyroidism
Dina Elaraj, MD, Northwestern Medicine, Endocrine Surgery
10:20 a.m.
Break
10:40 a.m. Yang
Minimally-Invasive Treatment for Pancreas Tumors
Anthony Yang, MD, Lurie Cancer Center, Surgical Oncology
11:00 a.m. Toft
Adrenal — How Often Should I Have It Checked?
Daniel Toft, MD, PhD, Northwestern Medicine, Endocrinology
11:20 a.m. Elaraj
Pheochromocytoma and Pregnancy
Dina Elaraj, MD, Northwestern Medicine, Endocrine Surgery
11:40 a.m. Zimmerman
Multiple Endocrine Neoplasia in Children
Don Zimmerman, MD, Ann and Robert H. Lurie Children's Hospital of Chicago, Pediatrics
12:00 p.m.
Lunch & Concurrent Patient-Centered Outcomes Research Institute Presentation
1:00 p.m. Kopp
Medullary Thyroid Cancer Update
Peter Kopp, MD, Northwestern Medicine, Endocrinology
1:20 p.m. Pearman
Resilience and Growth in the Face of Chronic Disease
Tim Pearman, PhD, Lurie Cancer Center, Supportive Oncology
1:40 p.m. Kalyan
Clinical Trials Available for Patients with MEN and How to Find Them
Aparna Kalyan, MD, Lurie Cancer Center, Hematology/Oncology
2:00 p.m.
Break
2:20 p.m. Sturgeon
Quality of Life Studies in MEN
Cord Sturgeon, MD, Lurie Cancer Center, Endocrine Surgery
2:40 p.m. Degreef
When to See a Genetic Counselor
Brittany Degreef, MS, Northwestern Medicine, Genetic Counseling
3:00 p.m. Pavone
Oncofertility
Mary Ellen Pavone, MD, Northwestern Medicine, Reproductive Endocrinology
3:20 p.m.
Break
3:40 p.m. Streicher
Sexual Health and Chronic Disease
Lauren Streicher, MD, Northwestern Medicine, Obstetrics & Gynecology
5:00 p.m.
Reception at the Hyatt Chicago Magnificent Mile with American Multiple Endocrine Neoplasia Support

MEN Clinic

A multi-disciplinary MEN clinic will be held on Friday, October 21 at the Lurie Cancer Center for anyone who would like to have a comprehensive exam with the physicians, surgeons, genetic counselors, and other specialists from Northwestern Medicine. To schedule an appointment, please call practice manager Tam Nguyen at (312) 695-2643. Normal charges will be applied.

MEN-1 Survey

Dr. Cord Sturgeon at the Northwestern University Feinberg School of Medicine is working with the American Multiple Endocrine Neoplasia Support Group to learn more about the experience of living with and being treated for MEN-1. His research team has created a survey (Northwestern IRB Number: STU00202810) that includes some basic questions about yourself, your diagnosis and treatment, and aspects of your quality of life. Anyone who is 18 years or older with MEN-1 is welcome to participate. The survey should only take 5-15 minutes to complete, and all of your responses will be anonymous. Click here to participate in the survey

Parking

Parking is available at Northwestern Memorial Hospital's Huron/St. Clair Garage, 222 E. Huron St. (Google map) and at the Erie / Ontario Garage, 321 E. Erie (Google map). Discounted passes can be purchased for $7 at the registration table.

View a printable map with directions from the parking garages to the Lurie Research Center.